ChSNC key terms
ChSNC · Get comfortable with the vocabulary.
- Supplemental Security Income (SSI)
- Related: Social Security Disability Insurance (SSDI), Deeming of Income and Resources, Medicaid
A needs-tested federal cash benefit for people with limited income and resources who are aged, blind, or disabled. For a child under 18, family income and assets are counted in deciding eligibility.
- Social Security Disability Insurance (SSDI)
- Related: Supplemental Security Income (SSI), Disabled Adult Child (DAC) Benefit, Childhood Disability
An insurance benefit paid to workers who become disabled and to certain family members, based on the worker's earnings record and payroll tax contributions. Eligibility does not depend on household income or assets.
- Disabled Adult Child (DAC) Benefit
- Related: Social Security Disability Insurance (SSDI), Childhood Disability, Substantial Gainful Activity (SGA)
An SSDI benefit paid to a person whose disability began before age 22 and who is the child of a deceased, disabled, or retired worker. It can continue for life even if the recipient marries, in limited cases.
- Substantial Gainful Activity (SGA)
- Related: Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Impairment-Related Work Expenses (IRWE)
The earnings threshold Social Security uses to decide whether a person is working at a level that disqualifies them from disability benefits. The amount is adjusted annually and differs for blind and non-blind claimants.
- Impairment-Related Work Expenses (IRWE)
- Related: Substantial Gainful Activity (SGA), Plan to Achieve Self-Support (PASS)
Costs a worker with a disability pays out of pocket for items or services needed to work, such as attendant care or specialized equipment. These amounts are subtracted from earnings when applying the SGA test.
- Plan to Achieve Self-Support (PASS)
- Related: Supplemental Security Income (SSI), Impairment-Related Work Expenses (IRWE)
An approved written plan allowing an SSI recipient to set aside income or resources for a work goal, such as education, training, or starting a business. The set-aside assets are excluded when determining SSI eligibility.
- Medicaid
- Related: Medicare, Home- and Community-Based Services (HCBS) Waiver, Supplemental Security Income (SSI)
A joint federal-state health program for low-income people, including many with disabilities. It covers services Medicare does not, such as long-term supports, personal care, and home- and community-based services.
- Medicare
- Related: Medicaid, Social Security Disability Insurance (SSDI)
A federal health insurance program primarily for people 65 and older and for some people with long-term disabilities who qualify through SSDI. Coverage is divided into parts covering hospital, medical, and prescription drug benefits.
- Home- and Community-Based Services (HCBS) Waiver
- Related: Medicaid, Intermediate Care Facility for Individuals with Intellectual Disabilities (ICF/IID)
A Medicaid authority letting states fund services such as in-home support, respite, and supported employment so a person can live in the community rather than an institution. Waiver slots are often subject to waiting lists.
- Intermediate Care Facility for Individuals with Intellectual Disabilities (ICF/IID)
- Related: Home- and Community-Based Services (HCBS) Waiver, Medicaid
A Medicaid-funded residential facility providing active treatment for people with intellectual disabilities. It is an institutional setting, distinct from community-based options and subject to different eligibility and funding rules.
- Deeming of Income and Resources
- Related: Supplemental Security Income (SSI), Disabled Adult Child (DAC) Benefit
The rule that counts some of a parent's or spouse's income and assets as available to an SSI applicant. Deeming usually ends when a child turns 18, which can make an adult child newly eligible.
- Childhood Disability
- Related: Supplemental Security Income (SSI), Disabled Adult Child (DAC) Benefit, Age 18 Redetermination
The Social Security definition of disability for applicants under 18, based on marked and severe functional limitations rather than ability to work. The standard is re-evaluated under adult rules at age 18.
- Age 18 Redetermination
- Related: Childhood Disability, Deeming of Income and Resources
The review Social Security conducts when an SSI recipient turns 18, applying adult disability rules and ending parental income deeming. Many children lose benefits, while others become eligible for the first time.
- Special Needs Trust (SNT)
- Related: First-Party Special Needs Trust, Third-Party Special Needs Trust, Sole Benefit Rule
A trust designed to hold assets for a person with a disability while preserving eligibility for needs-tested benefits. Trust distributions supplement rather than replace public benefits such as SSI and Medicaid.
- First-Party Special Needs Trust
- Related: Special Needs Trust (SNT), Third-Party Special Needs Trust, Pooled Trust, Medicaid Payback
A trust funded with the beneficiary's own assets, such as an inheritance, settlement, or back benefits. It must be created before age 65 and generally includes a Medicaid payback provision.
- Third-Party Special Needs Trust
- Related: Special Needs Trust (SNT), First-Party Special Needs Trust, Testamentary Trust
A trust funded with assets belonging to someone other than the beneficiary, such as a parent or grandparent. It has no Medicaid payback requirement and can be set up at any age.
- Pooled Trust
- Related: First-Party Special Needs Trust, Medicaid Payback
A trust run by a nonprofit that combines assets from many people with disabilities into a single master trust, with separate subaccounts. It can serve beneficiaries of any age and often has a payback provision.
- Medicaid Payback
- Related: First-Party Special Needs Trust, Pooled Trust
A requirement that, on the death of a trust beneficiary, remaining trust assets reimburse the state for Medicaid benefits paid. It applies to first-party special needs trusts and is absent from third-party trusts.
- Sole Benefit Rule
- Related: Special Needs Trust (SNT), Available Resource
The requirement that a special needs trust exist only for the beneficiary's benefit, with no other person entitled to distributions. Violating it can cause the trust to be counted as an available resource.
- Available Resource
- Related: Sole Benefit Rule, Supplemental Security Income (SSI)
Any asset a benefits program counts when deciding eligibility, such as cash, bank accounts, or real estate the person could use for support. Trust assets are excluded only if the trust meets program rules.
- ABLE Account
- Related: Qualified Disability Expenses, Special Needs Trust (SNT)
A tax-advantaged savings account for people whose disability began before age 26. Contributions are limited annually, earnings grow tax-deferred, and funds can pay for qualified disability expenses without affecting most benefit eligibility.
- Qualified Disability Expenses
- Related: ABLE Account
Spending categories permitted from an ABLE account, including education, housing, transportation, health, and assistive technology. They must relate to the beneficiary's disability and improve independence or quality of life.
- Guardianship
- Related: Supported Decision-Making, Power of Attorney, Conservatorship
A court-ordered arrangement in which a person is appointed to make decisions for someone found unable to do so. It can cover personal care, finances, or both, and removes legal rights from the person under guardianship.
- Supported Decision-Making
- Related: Guardianship, Power of Attorney
An arrangement where a person with a disability keeps legal authority but chooses trusted supporters to help gather information and understand choices. It is a less restrictive alternative to guardianship.
- Power of Attorney
- Related: Guardianship, Supported Decision-Making
A written document in which a person authorizes someone else to act on their behalf, either for finances or health care. It ends at death and typically requires the person to have capacity when signing.
- Conservatorship
- Related: Guardianship
A court appointment giving one person authority over another's financial affairs, often called a guardian of the estate. It may be used when a person cannot manage money but can still make personal decisions.
- Testamentary Trust
- Related: Third-Party Special Needs Trust, Letter of Intent
A trust created inside a will that takes effect at the grantor's death. Families often use a testamentary third-party special needs trust to provide for a child without disqualifying them from benefits.
- Letter of Intent
- Related: Testamentary Trust, Special Needs Trust (SNT)
A non-binding document describing a person's care preferences, routines, providers, and history for future caregivers. It accompanies legal and financial plans and guides trustees and successors.
- ABLE Age Adjustment Act
- Related: ABLE Account, Qualified Disability Expenses
Legislation that raised the age by which a disability must begin for ABLE account eligibility from 26 to 46. It expands access to tax-advantaged savings for more people with disabilities.
- Life Care Plan
- Related: Special Needs Financial Plan, Caregiver Continuity Plan
A structured projection of the services, equipment, housing, and support a person with a disability will need over their lifetime, with estimated costs. It is used in planning, insurance claims, and litigation.
- Special Needs Financial Plan
- Related: Life Care Plan, Caregiver Continuity Plan, Special Needs Trust (SNT)
An integrated plan coordinating income, benefits, insurance, savings, and legal documents for a family member with a disability. It balances current needs with long-term security across the person's lifetime.
- Caregiver Continuity Plan
- Related: Letter of Intent, Life Care Plan
A plan addressing what happens when the primary caregiver dies or can no longer provide care. It names successors, documents care instructions, and funds the transition to new arrangements.
- Benefit Coordination
- Related: Special Needs Financial Plan, Supplemental Security Income (SSI), Medicaid
The process of sequencing and combining public benefits, insurance, and private assets so they work together without one program reducing another. It considers income limits, resource tests, and work incentives.
- Life Insurance Trust
- Related: Third-Party Special Needs Trust, Special Needs Financial Plan
An irrevocable trust that owns a life insurance policy so proceeds are excluded from the insured's estate and directed to a beneficiary. Families often pair it with a special needs trust for a child with a disability.
- Estate Tax Exclusion
- Related: Life Insurance Trust, Third-Party Special Needs Trust
The amount of a person's estate that can pass free of federal estate tax. Properly structured special needs trusts and lifetime gifts can reduce exposure to that tax.
- Accumulation vs. Spend-Down Planning
- Related: Special Needs Financial Plan, Life Care Plan
Two planning postures for families: building assets for a long horizon versus drawing them down to fund care. The choice affects trust funding, insurance needs, and benefit eligibility.