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ChSNC key terms

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Supplemental Security Income (SSI)

A needs-tested federal cash benefit for people with limited income and resources who are aged, blind, or disabled. For a child under 18, family income and assets are counted in deciding eligibility.

Related: Social Security Disability Insurance (SSDI), Deeming of Income and Resources, Medicaid
Social Security Disability Insurance (SSDI)

An insurance benefit paid to workers who become disabled and to certain family members, based on the worker's earnings record and payroll tax contributions. Eligibility does not depend on household income or assets.

Related: Supplemental Security Income (SSI), Disabled Adult Child (DAC) Benefit, Childhood Disability
Disabled Adult Child (DAC) Benefit

An SSDI benefit paid to a person whose disability began before age 22 and who is the child of a deceased, disabled, or retired worker. It can continue for life even if the recipient marries, in limited cases.

Related: Social Security Disability Insurance (SSDI), Childhood Disability, Substantial Gainful Activity (SGA)
Substantial Gainful Activity (SGA)

The earnings threshold Social Security uses to decide whether a person is working at a level that disqualifies them from disability benefits. The amount is adjusted annually and differs for blind and non-blind claimants.

Related: Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Impairment-Related Work Expenses (IRWE)
Impairment-Related Work Expenses (IRWE)

Costs a worker with a disability pays out of pocket for items or services needed to work, such as attendant care or specialized equipment. These amounts are subtracted from earnings when applying the SGA test.

Related: Substantial Gainful Activity (SGA), Plan to Achieve Self-Support (PASS)
Plan to Achieve Self-Support (PASS)

An approved written plan allowing an SSI recipient to set aside income or resources for a work goal, such as education, training, or starting a business. The set-aside assets are excluded when determining SSI eligibility.

Related: Supplemental Security Income (SSI), Impairment-Related Work Expenses (IRWE)
Medicaid

A joint federal-state health program for low-income people, including many with disabilities. It covers services Medicare does not, such as long-term supports, personal care, and home- and community-based services.

Related: Medicare, Home- and Community-Based Services (HCBS) Waiver, Supplemental Security Income (SSI)
Medicare

A federal health insurance program primarily for people 65 and older and for some people with long-term disabilities who qualify through SSDI. Coverage is divided into parts covering hospital, medical, and prescription drug benefits.

Related: Medicaid, Social Security Disability Insurance (SSDI)
Home- and Community-Based Services (HCBS) Waiver

A Medicaid authority letting states fund services such as in-home support, respite, and supported employment so a person can live in the community rather than an institution. Waiver slots are often subject to waiting lists.

Related: Medicaid, Intermediate Care Facility for Individuals with Intellectual Disabilities (ICF/IID)
Intermediate Care Facility for Individuals with Intellectual Disabilities (ICF/IID)

A Medicaid-funded residential facility providing active treatment for people with intellectual disabilities. It is an institutional setting, distinct from community-based options and subject to different eligibility and funding rules.

Related: Home- and Community-Based Services (HCBS) Waiver, Medicaid
Deeming of Income and Resources

The rule that counts some of a parent's or spouse's income and assets as available to an SSI applicant. Deeming usually ends when a child turns 18, which can make an adult child newly eligible.

Related: Supplemental Security Income (SSI), Disabled Adult Child (DAC) Benefit
Childhood Disability

The Social Security definition of disability for applicants under 18, based on marked and severe functional limitations rather than ability to work. The standard is re-evaluated under adult rules at age 18.

Related: Supplemental Security Income (SSI), Disabled Adult Child (DAC) Benefit, Age 18 Redetermination
Age 18 Redetermination

The review Social Security conducts when an SSI recipient turns 18, applying adult disability rules and ending parental income deeming. Many children lose benefits, while others become eligible for the first time.

Related: Childhood Disability, Deeming of Income and Resources
Special Needs Trust (SNT)

A trust designed to hold assets for a person with a disability while preserving eligibility for needs-tested benefits. Trust distributions supplement rather than replace public benefits such as SSI and Medicaid.

Related: First-Party Special Needs Trust, Third-Party Special Needs Trust, Sole Benefit Rule
First-Party Special Needs Trust

A trust funded with the beneficiary's own assets, such as an inheritance, settlement, or back benefits. It must be created before age 65 and generally includes a Medicaid payback provision.

Related: Special Needs Trust (SNT), Third-Party Special Needs Trust, Pooled Trust, Medicaid Payback
Third-Party Special Needs Trust

A trust funded with assets belonging to someone other than the beneficiary, such as a parent or grandparent. It has no Medicaid payback requirement and can be set up at any age.

Related: Special Needs Trust (SNT), First-Party Special Needs Trust, Testamentary Trust
Pooled Trust

A trust run by a nonprofit that combines assets from many people with disabilities into a single master trust, with separate subaccounts. It can serve beneficiaries of any age and often has a payback provision.

Related: First-Party Special Needs Trust, Medicaid Payback
Medicaid Payback

A requirement that, on the death of a trust beneficiary, remaining trust assets reimburse the state for Medicaid benefits paid. It applies to first-party special needs trusts and is absent from third-party trusts.

Related: First-Party Special Needs Trust, Pooled Trust
Sole Benefit Rule

The requirement that a special needs trust exist only for the beneficiary's benefit, with no other person entitled to distributions. Violating it can cause the trust to be counted as an available resource.

Related: Special Needs Trust (SNT), Available Resource
Available Resource

Any asset a benefits program counts when deciding eligibility, such as cash, bank accounts, or real estate the person could use for support. Trust assets are excluded only if the trust meets program rules.

Related: Sole Benefit Rule, Supplemental Security Income (SSI)
ABLE Account

A tax-advantaged savings account for people whose disability began before age 26. Contributions are limited annually, earnings grow tax-deferred, and funds can pay for qualified disability expenses without affecting most benefit eligibility.

Related: Qualified Disability Expenses, Special Needs Trust (SNT)
Qualified Disability Expenses

Spending categories permitted from an ABLE account, including education, housing, transportation, health, and assistive technology. They must relate to the beneficiary's disability and improve independence or quality of life.

Related: ABLE Account
Guardianship

A court-ordered arrangement in which a person is appointed to make decisions for someone found unable to do so. It can cover personal care, finances, or both, and removes legal rights from the person under guardianship.

Related: Supported Decision-Making, Power of Attorney, Conservatorship
Supported Decision-Making

An arrangement where a person with a disability keeps legal authority but chooses trusted supporters to help gather information and understand choices. It is a less restrictive alternative to guardianship.

Related: Guardianship, Power of Attorney
Power of Attorney

A written document in which a person authorizes someone else to act on their behalf, either for finances or health care. It ends at death and typically requires the person to have capacity when signing.

Related: Guardianship, Supported Decision-Making
Conservatorship

A court appointment giving one person authority over another's financial affairs, often called a guardian of the estate. It may be used when a person cannot manage money but can still make personal decisions.

Related: Guardianship
Testamentary Trust

A trust created inside a will that takes effect at the grantor's death. Families often use a testamentary third-party special needs trust to provide for a child without disqualifying them from benefits.

Related: Third-Party Special Needs Trust, Letter of Intent
Letter of Intent

A non-binding document describing a person's care preferences, routines, providers, and history for future caregivers. It accompanies legal and financial plans and guides trustees and successors.

Related: Testamentary Trust, Special Needs Trust (SNT)
ABLE Age Adjustment Act

Legislation that raised the age by which a disability must begin for ABLE account eligibility from 26 to 46. It expands access to tax-advantaged savings for more people with disabilities.

Related: ABLE Account, Qualified Disability Expenses
Life Care Plan

A structured projection of the services, equipment, housing, and support a person with a disability will need over their lifetime, with estimated costs. It is used in planning, insurance claims, and litigation.

Related: Special Needs Financial Plan, Caregiver Continuity Plan
Special Needs Financial Plan

An integrated plan coordinating income, benefits, insurance, savings, and legal documents for a family member with a disability. It balances current needs with long-term security across the person's lifetime.

Related: Life Care Plan, Caregiver Continuity Plan, Special Needs Trust (SNT)
Caregiver Continuity Plan

A plan addressing what happens when the primary caregiver dies or can no longer provide care. It names successors, documents care instructions, and funds the transition to new arrangements.

Related: Letter of Intent, Life Care Plan
Benefit Coordination

The process of sequencing and combining public benefits, insurance, and private assets so they work together without one program reducing another. It considers income limits, resource tests, and work incentives.

Related: Special Needs Financial Plan, Supplemental Security Income (SSI), Medicaid
Life Insurance Trust

An irrevocable trust that owns a life insurance policy so proceeds are excluded from the insured's estate and directed to a beneficiary. Families often pair it with a special needs trust for a child with a disability.

Related: Third-Party Special Needs Trust, Special Needs Financial Plan
Estate Tax Exclusion

The amount of a person's estate that can pass free of federal estate tax. Properly structured special needs trusts and lifetime gifts can reduce exposure to that tax.

Related: Life Insurance Trust, Third-Party Special Needs Trust
Accumulation vs. Spend-Down Planning

Two planning postures for families: building assets for a long horizon versus drawing them down to fund care. The choice affects trust funding, insurance needs, and benefit eligibility.

Related: Special Needs Financial Plan, Life Care Plan